About covidCAREgroup
Founded in 2021 | Global Long COVID Community | Members in 110+ Countries | 60+ Million Lives Touched
Building Knowledge, Community, and Recovery for Long COVID
The covidCAREgroup (CCG) was founded in 2021 during the early stages of the global COVID-19 pandemic, when millions of people began experiencing persistent symptoms after infection and reliable information about Long COVID was limited.
What began as a small online support network quickly grew into one of the largest Long COVID education and advocacy communities in the world, connecting patients, clinicians, researchers, and advocates across the globe.
Our mission has always been simple:
Connect emerging science with real-world recovery support for people living with Long COVID and post-viral illness.
A Global Community Supporting Recovery
Since its founding, covidCAREgroup has grown into a global education and support network with members in more than 110 countries.
Through our online platforms, community initiatives, and educational resources, we have reached millions of individuals seeking guidance, validation, and practical strategies for navigating Long COVID and other complex chronic conditions.
Our community includes:
• individuals living with Long COVID and post-viral illness
• clinicians and healthcare professionals
• researchers studying post-viral conditions
• caregivers and family members supporting recovery
• advocates working to raise awareness of Long COVID
Together, we have helped amplify the voices of patients while supporting the growing body of knowledge surrounding Long COVID.
“Thank you! Covid care group is what really helped me heal from long covid! It was a lifesaver, so thank you for your contributions!!”
Clinical Expertise and Leadership
covidCAREgroup was founded by Delainne Bond, BSN, RN, a healthcare leader with a background in clinical nursing, neuropsychology collaboration, and complex chronic illness management.
Over the past several years, Delainne has worked internationally with clinicians, researchers, and patient communities to advance education and awareness surrounding Long COVID and post-viral recovery.
Her work has focused on translating complex emerging research into accessible, practical knowledge that individuals and healthcare providers can use to better understand Long COVID.
Through this work, covidCAREgroup has helped bridge an important gap between:
• rapidly evolving medical research
• patient experiences and lived reality
• practical recovery strategies
Advancing Long COVID Education
As Long COVID research continues to evolve, covidCAREgroup has developed educational resources that help individuals better understand the biological mechanisms believed to contribute to persistent symptoms.
Topics we frequently explore include:
• immune system dysregulation
• mast cell activation and histamine signaling
• neurological inflammation and brain fog
• autonomic nervous system dysfunction
• post-viral autoimmune responses
• recovery pacing and nervous system regulation
By translating emerging scientific findings into clear educational resources, we help individuals make informed decisions about their health while supporting meaningful conversations with healthcare providers.
From Education to Recovery
As awareness of Long COVID grows, the mission of covidCAREgroup is evolving beyond education and advocacy toward a broader focus on recovery and resilience.
In partnership with clinical professionals and wellness experts, we are currently developing Long COVID Recovery Retreats designed to support individuals navigating post-viral illness.
These retreats will provide structured environments where participants can focus on:
• nervous system regulation and recovery
• inflammation and metabolic health
• pacing and energy management
• restorative sleep and stress reduction
• nutrition and lifestyle strategies that support healing
Our goal is to create spaces where individuals can step away from the daily challenges of chronic illness and focus on restoring balance, building resilience, and reconnecting with their bodies.
A Growing Collaboration
As the Long COVID landscape continues to evolve, covidCAREgroup works closely with ProMedView Strategic Clinical Solutions, a clinical consulting organization focused on behavioral health, complex recovery, and workforce health.
This collaboration allows us to bring together:
• patient advocacy and lived experience
• clinical expertise and healthcare strategy
• interdisciplinary perspectives on recovery
Together, we are committed to advancing understanding of Long COVID while helping individuals and communities move toward meaningful recovery.
covidCAREgroup at a Glance
Founded: 2021
Global reach: 110+ countries
Community impact: Millions of individuals reached worldwide
Focus areas include:
• Long COVID education and advocacy
• Post-viral illness awareness
• Recovery support and resilience strategies
• Community engagement and collaboration
Looking Ahead
Long COVID is still being studied and much remains to be learned about the long-term effects of SARS-CoV-2 infection.
However, one thing has become clear:
Recovery is not only about understanding illness, it is also about building community, sharing knowledge, and supporting one another through the healing process.
The covidCAREgroup remains committed to advancing education, fostering collaboration, and creating pathways toward recovery for individuals navigating Long COVID and post-viral conditions.
Join the Community
Whether you are living with Long COVID, supporting a loved one, or working to advance research and care for post-viral illness, you are welcome in the covidCAREgroup community.
Together, we continue to learn, advocate, and build a future where recovery is possible.
“Thank you for your continued efforts to help those of us who are suffering.”
Connect with us!
Free education on our blog page with factual information and resources supported by evidence-based research about COVID, Long COVID, and tools for recovery.
Interactive discussions on social media through COVID Care Group (facebook), CovidCareGroup (reddit), LongCovid (reddit), X @COVID CareGroup and Instagram @NurseLaneyPMV .
Official contributors to the Meta COVID-19 Update initiative.
“This group has been and continues to be a lifeline.”
covidCAREgroup Impact
Our Impact
Since its founding in 2021, covidCAREgroup has become one of the most widely recognized Long COVID education and advocacy communities in the world.
What began as a small patient support initiative has grown into a global network connecting individuals navigating post-viral illness with reliable information, clinical insight, and community support.
Today our work continues to help individuals better understand Long COVID and the complex biological processes that may contribute to persistent symptoms.
covidCAREgroup by the Numbers
Global Reach
Members and followers from 110+ countries
Community Impact
Millions of individuals reached through education, advocacy, and community engagement
Education
Hundreds of discussions, resources, and educational posts focused on Long COVID and recovery
Clinical Collaboration
Engagement with clinicians, researchers, and healthcare professionals studying post-viral illness
Advancing Long COVID Awareness
Through community engagement and educational initiatives, covidCAREgroup has helped raise awareness of key Long COVID topics including:
• immune dysregulation
• mast cell activation syndrome (MCAS)
• neurological complications
• post-viral autoimmune responses
• pacing and nervous system recovery strategies
These discussions help bridge the gap between emerging research and real-world experiences of individuals navigating Long COVID.
A Global Community Built on Shared Knowledge
At the heart of covidCAREgroup is a community committed to sharing knowledge, supporting recovery, and advocating for greater understanding of Long COVID.
Members of our community include:
• individuals living with Long COVID
• healthcare professionals
• researchers studying post-viral illness
• caregivers and family members
• advocates working to raise awareness
Together, this network continues to shape the conversation around Long COVID and recovery.
The Next Phase: Recovery and Resilience
As awareness of Long COVID grows, covidCAREgroup is expanding its mission to include structured recovery experiences designed to support individuals navigating post-viral illness.
Our upcoming Long COVID Recovery Retreats will bring together clinicians, wellness experts, and community members in supportive environments focused on healing, resilience, and recovery.
These retreats will focus on:
• nervous system regulation
• inflammation management
• pacing and energy restoration
• nutrition and metabolic health
• stress reduction and sleep optimization
